@ooli@lemmy.world to Technology@lemmy.worldEnglish • 2 years agoAll Those 23andMe Spit Tests Were Part of a Bigger Planwww.bloomberg.comexternal-linkmessage-square93arrow-up1414
arrow-up1414external-linkAll Those 23andMe Spit Tests Were Part of a Bigger Planwww.bloomberg.com@ooli@lemmy.world to Technology@lemmy.worldEnglish • 2 years agomessage-square93
minus-square@Staccato@lemmy.worldlinkfedilinkEnglish5•2 years ago23andme requires you to agree to what they ask, which is far more than what Johns Hopkins did for Henrietta Lacks.
minus-squareMelpomenelinkfedilink1•2 years agoArguably, the only reason they bother to ask is the negative attention the medical field got from Henrietta Lacks. And they’re still not great at it.
minus-square@Staccato@lemmy.worldlinkfedilinkEnglish1•2 years agoInformed consent laws were around well before The Immortal Life of Henrietta Lacks came out. I think there were earlier publicized examples of subject mistreatment (like Tuskegee) that already pushed the field to be better.
23andme requires you to agree to what they ask, which is far more than what Johns Hopkins did for Henrietta Lacks.
Arguably, the only reason they bother to ask is the negative attention the medical field got from Henrietta Lacks. And they’re still not great at it.
Informed consent laws were around well before The Immortal Life of Henrietta Lacks came out. I think there were earlier publicized examples of subject mistreatment (like Tuskegee) that already pushed the field to be better.