I’m not great with details, but I remember reading that many of us in the neurodiverse community struggle with sleep or energy levels.
Back in my early 20s, I went through the whole sleep clinic process. I was diagnosed with sleep apnea and mild narcolepsy. They prescribed me a full-face CPAP mask because my mouth doesn’t stay closed at night. That didn’t last long I dumped it after 2 months. I’m not a still sleeper — more like a rotisserie chicken — and the full mask just made me choke on my own drool. The doctors were frustrated and not very helpful. It felt like they expected me to control my body even while unconscious.
Now, over 10 years later, I’m going through the process again. Apparently, my body still isn’t getting enough oxygen during sleep, and it’s causing problems.
Still, I can’t help but wonder if the doctors are missing something — like autism as a potential root cause of sleep issues. In my neurodiverse friend group (both autistic and ADHD), I’m the only one not sleeping 12 or more hours a day. So now I’m left wondering what’s really going on — with me, and with them.
This is the most academic answer I have seen so far. Any source on those stats? My doctors may listen if I can give them something.
They should be aware, it’s not a new or poorly explored correlation. It’s been pretty well substantiated. That said it would not be the first time a doctor was ignorant about issues for people with autism, of course
From a quick search:
https://journals.sagepub.com/doi/10.1177/27546330241238668 - 80% of adults and adolescents with asd experience sleep disruption
https://www.frontiersin.org/journals/psychiatry/articles/10.3389/fpsyt.2020.00273/full - 50-80% of asd populations in western countries experience sleep disruption relative to 20-50% of neurotypical peers
https://www.frontiersin.org/journals/psychiatry/articles/10.3389/fpsyt.2019.00366/full - rates reported higher, as high as 65-93%
Thank you! This will help me.